their gonna know us by name

Dylan, mad at the world after his Cath.




At 11:30pm, right when I was brushing my teeth for bed, a loud scream came out of the babies room. Of course it was Dylan. I gave a min to see if he would go back to sleep, but this scream was different, he really sounded like he was in pain.



I got him out of bed and changed his dirty bottom. I freaked out, something was not right with my little man's little man. It was swollen in big puffy circles and looked like it was cutting off circulation to the top of it. So there we go, off to the ER again. Remember the other day when it was the best service ever? Well apparently last night was payback. They were so busy, there were puking kids everywhere. I took Dylan past the waiting room to some chairs at the end of the registration booths. A former 24 wk preemie should not be sitting with all those puking kids. We waited for 2 1/2 hours, while my lil guy just cried in pain. By this time he was bleeding out the end of his penis, I was told that he wasn't screaming as loud as other kids so he was not a top priority.



We finally got into a room, then after 1 1/2 the Dr finally came in. As I was trying to explain things to her, as she was rushing to get out the door. You know I waited for her for hours, she could have listened to me for a full min. She then sent in someone to cath him for an UTI, again they failed to listen to me, he is on a very strong antibiotic right now for his ear infection, he's not going to have a UTI. Guess what his urine came back negative....Imagine that. So they decided they weren't sure what is was, and informed me they were going to discharge him. No way I wanted to see a urologist, but again I was told there was not one in the entire hospital....BS!!! I got an attending in there, where she finally took the time to check him out. She had no clue that he was already on antibiotics, no clue that he was a preemie, really didn't know any of the important details....because the first lady never listened or took down the info. Do you know he was never even given an ID band either...I'm glad he doesn't have an allergy to anything.

She then told me he has Paraphimosis. When I asked her what it was, she told me she printed it on the discharge papers and I could go home and google it. Oh Hell NO! So again I needed to make a fuss to figure out what was wrong with my baby.



I finally leave and pull into the driveway at 6am. I go in get a shower and wait til 8 to start making phone calls to get into the urologist office today. We get there, Dylan's penis is bleeding again. They said they don't know what it is, give him Motrin, and let it heal itself. If it would get any bigger or continue to block urination they would need to cut it open and drain it. OUCH. So for now he just has to grin and bear it. Poor guy he can't even get his legs together. He hasn't had a wet diaper since 11:30pm last night. But the urologist says he can go 14 hrs or more without going he'll be fine....I am beginning to wonder about these Dr's.



While they were there they did Dylan's ultrasound on his bladder and kidneys. Come to find out his left kidney is a lot smaller then it should be and does have fluid in it. So they think he has the same VU Reflux like Ava. So now he will need a VCUG done in the next few weeks.



So here I sit, just got back from tumbling with Delaney, getting ready to make dinner, and I haven't been to bed since Wednesday night. I am whooped. Tomorrow I am off!!! I am sleeping in, darn it.